Helping patients find information when they are discovering their disease
Join our members in finding the resources and support you need to navigate your health journey.
Featured Support Groups
Connect with these highly rated patient advocacy groups that are making a difference in their communities
Osteogenesis Imperfecta Foundation
The mission of the OI Foundation is to improve the quality of life for those living with osteogenesis imperfecta through research, education, awareness, and mutual support.
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Cancer Support France
Support for English-speaking people touched by cancer in France
CDH UK
We like to think of CDH UK as a modern charity made up of experts providing complimentary care to patients and their families in the form of information, emotional and practical support and by conducting, encouraging and funding research. We are an independent leading CDH organisation consisting of patients, families, friends and medical professionals affected by Congenital Diaphragmatic Hernia (CDH) and the very first to be registered and based in the UK. We currently have offices in the North and South of England and a great team of Trustees and volunteers up and down the UK. We also work internationally on research projects and through official networks helping to mentor others to provide support and resources in their own nations and to encourage meaningful collaborations.
MDS UK
MDS UK Patient Support Group is a charity started in 2008 to raise awareness and offer support and information to patients and families affected by Myelodysplastic Syndromes & CMML . We also campaign to make treatments available and to increase Quality of Life (Q0L) for MDS & CMML patients. If you have MDS or CMML, or someone in your family has, you're in the right place.
International Gaucher Alliance
The IGA is a patient led international organisation that has become the ‘go to’ global voice for over 85% of the Gaucher community and has built its reputation through listening to and delivering outcomes that have impacted on patients and their carers’ lives.
Myeloma UK
<p>We fund research work that looks to answer questions about the development, detection, and treatment of myeloma to help improve the future for people with myeloma.</p><p>We work with healthcare professionals to improve care and secure access to cutting-edge cancer treatments to give more choices to people being treated for myeloma.</p><p>We provide tailored information and support designed to help people with myeloma, their families and their friends live their lives to the full and manage their myeloma.</p>